A terrible Monday was followed by a terrific Tuesday.
We figured out the best way to get the medicine (Thanks Dr. Johann Hsu – not sure how those names fit together). We went to the playroom TWICE to place Wii, air hockey and some pool (thanks go to my PhD student John Lewis for going with us). He laughed. He walked the halls. His brother and sister drove him around in the hospital, including down to the cafe. He told jokes to the doctors and had them in stitches. He visited with his grandparents, telling them everything that had gone on during the day. He was a new kid.
We know that will be his, and our, life for some time. One terrible day followed by a good one followed by a miserable one. But this trek is a marathon. There will times when we burn with pain mixed in with times of elation and joy. What we’ve always had in life — both good times and bad — will now happen in the extreme.
So after such a good day, we face a potentially difficult one today. At 10:00 AM EST, Harrison will have his next chemo treatment. The medicine today is the strongest he’ll have, and this is the only time he’ll have it. They will slowly push it over a FOUR HOUR period, otherwise they would burn his vein and heart. He will be monitored continuously for fear of a deadly allergic reaction. They told us not to worry when they put the crash cart beside his bed before they start. Don’t worry? Oh, no problem, we’ll just turn that part of us off for a few hours.
After the chemo they’ll monitor him for another 2 or 3 hours.
This. is. scary.
We believe God accomplishes his will through the prayers of his people. There are currently people in every time zone around the world who are praying at 1:00 every day (their local time) for Harrison. Meaning, of course, that every hour on the hour someone is interceding for my little man. God hears our prayers and answers. And he is kind, good, and merciful. Thank you for seeking his face on behalf of my son.
“For I consider that the sufferings of this present time are not worth comparing with the glory that is to be revealed to us. For the creation waits with eager longing for the revealing of the sons of God. For the creation was subjected to futility, not willingly, but because of him who subjected it, in hope that the creation itself will be set free from its bondage to corruption and obtain the freedom of the glory of the children of God. For we know that the whole creation has been groaning together in the pains of childbirth until now. And not only the creation, but we ourselves, who have the firstfruits of the Spirit, groan inwardly as we wait eagerly for adoption as sons, the redemption of our bodies. For in this hope we were saved. Now hope that is seen is not hope. For who hopes for what he sees? But if we hope for what we do not see, we wait for it with patience.
Likewise the Spirit helps us in our weakness. For we do not know what to pray for as we ought, but the Spirit himself intercedes for us with groanings too deep for words. And he who searches hearts knows what is the mind of the Spirit, because the Spirit intercedes for the saints according to the will of God. And we know that for those who love God all things work together for good, for those who are called according to his purpose. For those whom he foreknew he also predestined to be conformed to the image of his Son, in order that he might be the firstborn among many brothers. And those whom he predestined he also called, and those whom he called he also justified, and those whom he justified he also glorified.”
(Romans 8:18-30 ESV)